“Stephen Kauffman has shown how being a Superfan can inspire a community and empower someone living with ALS to transcend even the most devastating diagnoses,” said Calaneet Balas, President and CEO of the ALS Association.
WASHINGTON (PR WEB)
October 13, 2022
Award named after a Golden State Warriors fan living with ALS who was honored by the Naismith Memorial Basketball Hall of Fame
The ALS Association today announced a new award to honor “Superfans”, the most avid sports and entertainment fans who also live with ALS. The award is inspired by Stephen Kauffman, who was diagnosed with ALS in 2012 and was honored in 2021 by the Naismith Memorial Basketball Hall of Fame as a Golden State Warriors “Superfan.” The ALS Superfan campaign aims to raise $1 million, with 100% of proceeds going directly to ALS research.
“Stephen Kauffman has shown how being a Superfan can inspire a community and empower someone living with ALS to transcend even the most devastating diagnoses,” said Calaneet Balas, President and CEO of the ALS Association. “The Stephen Kauffman ALS Superfan campaign will allow us to honor the most dedicated sports and entertainment fans, while generating new funds dedicated to the search for new treatments and cures.”
To kick off the campaign, the ALS Association launched an auction featuring unique sports memorabilia, experiences and several other items. All proceeds from the auction – which ends at 9 p.m. ET on October 20 – will go directly to ALS research. You can donate or bid on an auction item here.
“I am honored and grateful for this recognition and happy that the campaign is helping to fund much-needed ALS research,” said Stephen. “I have always been a sports fan and have been blessed with a ringside seat to four Golden State Warriors championships, whether in the arena or at home watching television. I am grateful to all of the Warriors staff and community who have supported me over the years.
Stephen added: “I would like this award to pay tribute to sports fans from all walks of life who are battling ALS.”
The Golden State Warriors sponsored a private Bay Area event in Stephen’s honor.
Stephen’s father, Scott, is chairman of the board of directors of the ALS Association and acts as a caregiver for Stephen.
“Through this horrific journey known as ALS, our family’s shared love for the Golden State Warriors has kept us all going,” Scott said. “There is no doubt that many other families living with ALS share a similar bond around a favorite team, athlete or entertainer. We are humbled and grateful that this campaign honors Stephen while supporting the urgent work to end ALS.
The first recipient of the Stephen Kauffman ALS Superfan Award will be announced in the spring of 2023. Future recipients will be honored on an ongoing basis. If you know of a Superfan living with ALS who deserves recognition, please email [email protected]
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. During the disease, people lose the ability to move, speak, and eventually breathe. On average, it takes about a year before a final diagnosis of ALS is made. The disease is always fatal, usually within five years of diagnosis. There is no remedy.
About the ALS Association
The ALS Association is the largest philanthropic funder of ALS research in the world. The Association funds global research collaborations, helps people with ALS and their families through its national network of care and certified clinical care centers, and advocates for better public policies for people with ALS. The ALS Association strives to make ALS a livable disease while urgently searching for new treatments and a cure. For more information about the ALS Association, visit our website at http://www.als.org.
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